JENNA (jennanna) wrote in blindchildren,

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First post!

I am the mother of a beautiful baby girl named Miriam. She has Septo Optic Dysplasia and also suffers from pan-hypopituitarism. She is pretty much completely and forever blind unless some miracle comes to us but we have learned to cope with it. I created this community because it is very lonely as a parent of a blind child. We have more questions than jeopardy and nobody who truly understands to answer them, not even our daughters caseworkers. Not to mention we don't have any friends due to the fact that everyone gets uncomfortable when they find out about Miriam's illness.
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